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Narayana Health’s SRCC Children’s Hospital launches NF Parents Support Group

Narayana Health’s SRCC Children’s Hospital launches NF Parents Support Group

Innovative collaboration with Bharat NF Foundation to provide comprehensive support for families SRCC Children’s Hospital managed by Narayana Health launched the first-of-its-kind NF Parents Support Group in collaboration with Bharat NF Foundation. This initiative marks a significant advancement in the hospital’s mission to provide comprehensive care for children diagnosed with Neurofibromatosis Type 1 (NF1). Neurofibromatosis Type 1 (NF1), also known as Von Recklinghausen disease, is a rare genetic disorder affecting the nervous system, causing tumours to form on nerves throughout the body. Affecting approximately 1 in 3,000 people worldwide, NF1 is usually diagnosed in childhood, with symptoms often appearing in infancy or early childhood. There is currently no cure for NF1, and treatment focuses on managing symptoms and complications throughout a patient’s life. SRCC Children’s Hospital managed by Narayana Health has been at the forefront with its specialised Neurofibromatosis Clinic with active CSR support from a Swiss multinational, Cotecna India. The newly launched NF Parents Support Group, in collaboration with Bharat NF Foundation, aims to extend support beyond medical treatment, providing emotional and practical assistance to families navigating the complexities of NF1. Dr Anaita Hegde, Sr Consultant Paediatric Neurology, SRCC Children’s Hospital emphasised the importance of this initiative and said, "Our goal is to provide comprehensive, compassionate care to children battling NF1. The NF Parents Support Group will be a crucial resource for families, helping them connect, share experiences, and access necessary support.” Dr Sudhir K Gupta, Founder, Bharat NF Foundation, expressed his enthusiasm for the collaboration stated, “This collaboration with Narayana Health’s SRCC Children’s Hospital marks a significant step forward in supporting families affected by neurofibromatosis. We believe this initiative will greatly enhance the quality of life for these children and their families by providing them valuable information and support.” The NF Parents Support Group will offer peer support, educational resources, and advocacy, creating a stronger and more informed community.