He urged for early detection of genetic disorders to help in counselling the patients
The Vice President, M Venkaiah Naidu highlighted the importance of preventive measures to address the huge burden of genetic diseases like thalassemia and sickle cell anaemia in the country. He wanted the states to undertake mass screening of the children for early identification and management of genetic disorders.
Addressing a gathering after inaugurating the Research Laboratory, Advanced Diagnostic Laboratory and 2nd Blood Transfusion Unit at the Thalassemia and Sickle Cell Society (TSCS) in Hyderabad, the Vice President urged the private sector and NGOs to complement the government’s efforts in combating genetic diseases. Recognising that the available treatment options for these genetic conditions– bone marrow transplantation or regular blood transfusion – are cost-intensive and distressing to the child, Naidu called for a comprehensive approach to address the health challenge of thalassemia and sickle cell anaemia.
Mentioning that around 10-15 thousand babies are born every year with Thalassemia in India, the Vice President said that lack of awareness of these genetic diseases is a major impediment in their prevention and early diagnosis. Therefore, he urged all stakeholders – doctors, teachers, public figures, community leaders and media – to spread awareness of thalassemia and sickle cell disease. Complimenting TSCS for providing free treatment to patients suffering from these genetic diseases, Naidu wanted the private sector to set up more diagnosis and treatment facilities, especially in tier two and three cities and rural areas to make healthcare accessible to all.
Describing gene disorders as a major health concern in the country, the Vice President said that they impose a heavy economic and emotional burden on the affected families. Statistics show that the prevalence of beta- Thalassemia is in the range of 2.9 to 4.6 per cent in India whereas sickle cell anaemia is more prevalent among lower socio-economic sections of society, ranging from 5 to 40 per cent among the tribal populations. He said that early detection of genetic disorders will help in counselling the patients, thus avoiding the marriage of two individuals who are silent carriers of defective genes which may lead to serious genetic abnormalities in their children.
Noting that children affected with thalassemia need regular blood transfusions throughout their life, Naidu exhorted the youth to come forward and donate blood for the needy. He also appreciated the Union Health Ministry for coming up with detailed guidelines for the prevention and management of thalassemia, sickle cell anaemia and other variant anaemia.
Observing that the country has seen considerable improvement in various health indices since independence, the Vice President said that still there are challenges in ensuring quality and affordable healthcare for all. Stressing the need to address the shortage of trained human resources in healthcare on a war footing, he suggested making rural service mandatory for young doctors before getting admission to PG courses. “Scaling up e-Health initiatives in rural areas using digital tools is another cost-effective method for making healthcare accessible to all,” he added.
Referring to the problem of high out-of-pocket expenditure on health, Naidu said that it adversely affects the low-income households that face the risk of being pushed into poverty. Highlighting that quality and affordable healthcare is an important aspect of governance, Naidu said that it should be accorded top priority by the Center, states and local bodies. He praised the government’s flagship scheme ‘Ayushman Bharat’ for helping many poor families and stressed that providing quality and affordable healthcare is a shared responsibility of the public and private sectors.
On this occasion, Naidu also inaugurated the Main Auditorium and Mini Auditorium at TSCS.
Chandrakant Agrawal, President, Thalassemia and Sickle Cell Society, Ratnavali K, Vice President, TSCS, Dr Suman Jain, Chief Medical Research Officer and Secretary, TSCS, Azra Fathima, Clinic Psychologist, TSCS, donors of the Society, doctors, and other eminent personalities attended the event.